Category Archives: Fun

This seasons must have accessory……

I can confirm that this seasons must have accessory is……an Ostomy bag!! Ok so maybe we’re not quite ‘there’ yet but Ostomy’s are really on the radar at the moment and so they should be. I have always spoken of my desire to raise awareness and reduce stigma and lately this is happening in droves. All thanks to some very brave ladies posting pictures of themselves in bikinis with their Ostomies on display, one has even become an internet sensation.

It’s all great news and every time I click onto Facebook I see another picture of a proud wearer of an Ostomy bag, to the point where I feel it is almost becoming ‘normal’. Perhaps I see it as I am a member of many Ostomy related forums and so it is more prominent, but I do really think that it is becoming a little bit fashionable! (Dare I say that?!) Soon enough everyone will want one, they will become the ultimate accessory, fashion magazines will feature them and those who don’t have them will be a teeny bit jealous.

Ok, so I am exaggerating but it certainly feels as though society is becoming more geared up to the fact that many young people have an Ostomy. It is all just fantastic. And should you be a person (young, old or middle aged) facing an Ostomy then isn’t it great to see so much positivity and realise that life isn’t over because you have one. I said before, when I was facing my operation to have an Ostomy, there was none of this publicity and I know it would have made me feel better if I had seen it.

So it’s all good news, however, when I started this blog it wasn’t going to be totally focused around my Ostomy, (there are plenty of very good ones out there for that) the intention was to talk about life in general so that hopefully everyone could relate to it some way and maybe I could take reassurance that as a 30 something year old woman, I wasn’t the only one doing what I do!

So I will be blogging again in the next couple of days, this blog will be about knickers among other things (I hope this subject will intrigue you and draw you back!)But for now I just wanted everyone to know that I, not Vogue, had said it first, what this Season’s must have accessory is!!

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Ostomy’s go viral – let’s keep it going

Yesterday was a big day for Ostomates and IBD’ers which is great news and all thanks to a couple of lovely young women. BBC Breakfast did an interview with Rachel Flint (http://adventuresofthebaglady.wordpress.com/) about life with Crohn’s and the fatigue it causes, Rachel spoke openly about her Stoma and how it changed her life for the better, a very positive view on something lots of people see as negative. Unfortunately, the interview was marred by a consultant inferring that Crohn’s is caused by a poor diet (but more of that later). This ‘surprise’ element of the interview was handled very well by Rachel and David from Crohn’s and Colitis Uk http://www.crohnsandcolitis.org.uk/ However, overall Rachel gave a positive view of living with a stoma and at least IBD was brought to the forefront and about time. Rachel’s story and her feedback on the diet issue went viral with so many shares and likes and others offering their experience.

The second positive story of the day was a young woman called Vicky who posted a picture of herself sunbathing on the beach in a bikini with her ostomy bag on full display – good for her and to date the picture has generated over 200,000 likes and goodness knows how many shares but it is more good news for Ostomates. And well done to brave Vicky who also happens to have an amazing body! So all in all a positive day of showing Stoma’s in a positive light and maybe giving hope to others who may be facing life with a stoma for whatever reason.

It has also raised awareness of IBD (Inflammatory Bowel Disease) and hopefully the general public are now more aware of the effects of these types of diseases. Unfortunately I feel that Ulcerative Colitis has become the poor relation, it doesn’t get as much press as Crohn’s and seems to get brushed under the carpet at times. Of course, with Crohn’s getting press other IBD’s will naturally also get an upsurge in awareness but it is a shame that UC isn’t discussed as much as Crohn’s – but still, it’s all baby steps and it’s still good publicity. The difference between Crohn’s and Ulcerative Colitis is the amount of digestive tract that it affects. UC affects the large intestine (right down to the rectum and anus) whereas Crohn’s affects the whole digestive tract (throat, mouth, stomach, small and large intestine etc.). However, both diseases are debilitating, excruciating and embarrassing.

I mentioned the inference that diet could cause IBD and I would just like to say (as many others have) that there is absolutely no scientific evidence to back this up. Many people with IBD have led a healthy life, I grew up on homemade dinners, we didn’t have takeaways and I was an active child. I had symptoms from the age of 16 and yet it took 10 years for me to get a diagnosis, by this point my intestines were so ravaged that the disease was only going to get worse. The problem in my opinion, is not diet related but lack of early diagnosis. Perhaps if doctors would take our symptoms seriously and not send us away with a diagnosis of piles or Irritable Bowel Syndrome we may get help sooner. If my diagnosis was made earlier on then I would have got medication sooner and maybe my large intestine would have stood a fighting chance and maybe, just maybe I wouldn’t be living with a permanent ostomy. This does not make me bitter, I am still glad I have my Stoma, it has changed my life for the better and I am no longer chained to a toilet. But for a medical professional to insinuate we have brought these diseases on ourselves with a poor diet, is quite frankly insulting. Of course diet affects us and our bodies, we should have a healthy balanced diet, with plenty of fresh fruit and veg and the treats limited but we shouldn’t be made to feel that the odd trip to a fast food restaurant caused us to have a debilitating condition. IBD is an Auto-Immune Disorder, this means the body turns on itself and attacks healthy tissue, there is yet to be more research done to know what does cause it.

So all in all, despite the ‘diet’ issue, yesterday was a great day for people with IBD and stomas and I want to keep that going, let’s share the blogs, the pictures and the posts. Let’s quell the idea that stomas are for old people (I used to think this too, I used to joke about having a bag when I was older because of my UC) and let’s give hope to people facing having to have one, it’s not just people with IBD but people with Bowel Cancer may face a stoma too.

And you know what, you can wear whatever the hell you like, as those who follow me and read my blog know, I have never been shy about sharing the fact I wear a bag and often like to show people! The only reason I don’t share so many bikini pics is not because I am ashamed of my bag but because I am no supermodel, I don’t have a rocking bod, and no matter how much I work out and eat well I still feel I could be a good half a stone lighter (and I certainly look nowhere near as good as the beautiful Vicky). But my body got me through a tough time and I try to be proud of it but when faced with pictures on an hourly basis of people with amazing bodies it is hard not to have a negative body image (ironic that it’s my figure that bothers me not the stoma!) But as I bleat on about raising awareness and being proud of what you have then I should practice what I preach and show you what I have! Sherrill Bikini

Hooray, hooray it’s a happy holiday……

So I am off on holiday, I am very excited as hopefully you will remember from my previous posts how much I love holidays!

But before I talk about this I must first celebrate my success! Yes, I did it, I completed the Bupa 10K run in London on Sunday! I was so chuffed, I got round in 1 hour 8 minutes which was ok for my first one, I also managed to run the whole thing (no walking!) although I did have to stop 500 metres from the finish line to throw up a little bit – but I carried on and made it through! I also cried when I got to the Marquee where all the others were, I could feel myself welling up as I crossed the finish line but I held it back until I saw Mike and the Beating Bowel Cancer team! It doesn’t take much for me to cry at the best of times but I think this was just such a huge mental achievement after the last few years that all the emotion came out! In April last year I was sat in the Surgeons office and I was given the all clear, but I was also feeling fat and unfit and never dreamed I could run 1km let alone 10km – so I am really proud and showing everyone who is facing something similar that you can overcome your obstacles! Everyone was so generous and supportive, we managed to raise £1010 in sponsorship money for Beating Bowel Cancer which is amazing and will really help to raise awareness and save lives. Thank you to everyone who has sponsored or supported us.

Once the run was over it was time to get into holiday mode, starting with a celebratory bottle (or 2!) of champagne that afternoon/evening and then on the Monday, Mike and I had a lovely two hour spa experience booked complete with full body massage, it was bliss and well needed. I nearly didn’t make it due to the champagne hangover but I soldiered on. A lot of people with Stoma’s worry about things like swimming and spas but really it is ok and no-one needs to know you have it.  Massages are fine and just the same as before and as for swimming and the spa – well those gorgeous high waisted bikinis come in handy again (I still can’t stop buying them).  I have to say, that I think my sister may have needed the spa more having just completed a 100km walk (yes you read that right, 100km!) with her boyfriend that weekend. They did theirs for National Rheumatoid Arthritis Association as Leanne has Rheumatoid Arthritis unfortunately, so hats off to both them but especially my fabulous sis who also has her own battles to overcome. So we have both done our bit for charity, and if you notice a gorgeous blonde walking wonky alongside a limping man then you know it is only Leanne & her boyfriend still recovering from their walk!

I really should have blogged twice these past couple of weeks as so much has been going on but it’s also been difficult trying to fit it all in (I am BZ remember?!) so I will try not to talk for pages and pages but I have a glass of bubbly in hand as I type (I am officially on holiday) so I may chat lots.

So, back to the holiday – woo hoo, I am off to Turkey tomorrow for two whole weeks with Mike, I cannot wait, it has come at exactly the right time too, after the run and with lots of great stuff happening at work, it is really time to chill and recharge. We are going all inclusive and to a hotel with lots of entertainment. We both love it, you’ve got to have a bit of the ‘Benidorm’ on holiday and evening bingo and stage shows are where it’s at 😉 We also love the daytime activities, well Mike does, the activity I like is choosing which cocktail to have and turning over on my sun lounger. Mike joins in everything, so we don’t see much of each other during the day, we reconvene at lunch and when I am demanding a drink from the bar but we both have fun! We are both very similar on holiday and like pretty much the same stuff which is great, makes it much easier. I have had a boyfriend before who liked to do ‘trips’, I can’t think of anything worse than being stuck on a coach for the best part of a sunny day trying to find culture in Mallorca, so when forced to compromise (it’s good for relationships apparently) I am not the happiest – cue arguments and tantrums. So to have a relationship where we both enjoy the same is great.

A quick bit on holidays with a stoma – you can still go on holiday and enjoy it the same and do all the same activities you would as before, I find my stoma behaves on holiday (i.e. not too active, knows when to be quiet), I don’t know if this is because of the heat, being relaxed or a combination, but because of this I feel it is my destiny to holiday as a full time job! The only difference with holidaying with a stoma is the amount of supplies you have to take. You must make sure you have absolutely enough of everything and extras ‘just in case’ and take it all in hand luggage in case your suitcase goes missing. The advantage to this however, is being able to have extra hand luggage allowance due to a medical condition so I am able to use my carry on to stash a few extra clothes too! Of course I am also being cautious, making sure I have something to change into in case of a leak but it is also handy to stash a few bits to get me through a couple of days, so in the terrifying event my case goes missing I don’t have to parade around in an ‘I love Turkey’ T-shirt and a Speedo swimsuit!

What I would like to know is if there is anyone out there who has actually mastered the art of packing light? We all read about it in magazines and how one sarong can magically be dressed three ways (although why would I wear my sarong round the pool then drape it artfully around my neck come the evening, I would be so paranoid a boob would pop out) and how you only need a white shirt and a pair of shorts and you have a weeks worth of outfits, but has anyone actually done this? Isn’t part of the ritual of going on holiday to take too many clothes and shoes in the event we may just want to wear it and to come home having worn barely half, saying ‘I took too much, I can definitely pack light next year’……

So I am signing off, ready for the stress of the outward journey, only to relax once through customs with a Duty Free carrier bag full of purchases I don’t need and a glass of bubbly in hand as I am ‘officially on holiday, again’ (besides there are no time zones at airports or on planes so bottoms up!).

See you in a couple of weeks all! J

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