These past few days of Christmas have got me thinking. These modern days are unfortunately, so full of consumerism and greed, people are queuing for the sales at 5am on Boxing Day and poor retail staff are barely getting a day off to enjoy Christmas. At what point did the material things in life outweigh spending time with loved ones? For those who have lost loved ones, I am sure they would trade all the presents in the world if it meant one more Christmas day with them, so why are we still so fixated on ‘getting a bargain’ rather than personal time? Would we rather spend Christmas day glued to our phones waiting for the next sale item to pop up, before going to bed at 10pm ready to get up at 5am to hit the sales than spend it ‘in the moment’? I know I would rather turn my phone off for the day and enjoy the time with my loved ones, playing silly board games, laughing, having to dive through 3 black sacks of wrapping paper because someone thinks they threw away a gift voucher, not arguing over the best chocolates in the Roses tin (as I am the only one who likes the creams, yay for me!) and deciding who’s turn it is to make the 10th cup of tea of the day. I am not going to deny my love of shopping but I know when to draw the line and when family time is priority. I could harp on for hours on this subject as it makes me so cross that everywhere is consumed with greed, shouldn’t we just incorporate some simple measures back into our lives? Far better to have a lived a life full of love and friendship than be surrounded by gadgets, clothes and a cold heart.
A lot of my Christmases’ were marred by my Ulcerative Colitis, rushing to the toilet in between trying to eat a bit of turkey all whilst plastering a smile on my face for the sake of my family. When you have a debilitating illness, part of it is putting on a front as you don’t want others to know how unwell you really are, partly because you don’t want to worry them or spoil their day but partly because you don’t actually want to believe it yourself. In 2010 I spent Christmas eve in hospital but luckily wasn’t admitted, in 2011 I was really excited for Christmas as it was 4 months post-op and I knew I would be able to enjoy it. Unfortunately, a hazard of having no large bowel is the risk of blockages, (comes with the territory, especially in the early days, you learn to manage it). A bit of steak on Christmas eve resulted in immense pain and a blockage on Christmas day (my sister had even removed the fibrous parts from the parsnips so I could enjoy them and I never got to eat them!) so off mum and I went to A&E, but I only walked around the car park for a bit as I really didn’t want to go in! Eventually I decided I was well enough but had to spend most of the rest of day sleeping. Christmas 2012 was ok but my 2nd op in early January was looming upon me so played on my mind a bit. Then in 2013 I came down with a dreaded virus, I knew I wasn’t right when a bottle of champagne I opened on Christmas Eve lasted me for hours! I luckily got through Christmas day and just about managed Boxing Day before succumbing and spending 4 days in bed.
Despite all that, I still consider myself incredibly lucky as having no bowel and an ostomy bag has meant I am here to enjoy the time with my family and friends and there are so many people out there who don’t get that opportunity. I am also determined that this Christmas there will be no A&E, no steak, no virus and the champagne will slide down a bit quicker!!
If you are having a hard time this Christmas, for whatever reason, try and take what good you can from it and have faith that things can get better. And for all of us, put down the phone, spend a bit longer with loved ones, go back to basics, argue over monopoly and the purple sweets and how about giving the sales a miss on boxing day and snuggling up with hot chocolates and silly films instead?
And on that note, all that leaves me to say is, whatever you are doing and wherever you are, make it a good one and have a very merry Christmas and New Year! x
Over the last couple of months, there has been lots going on in my life and yet I still seemed to have had writers block and not been able to come up with a post, despite always saying I would definitely write weekly! But certain things have taken place this week and it has made me think and given me some inspiration for my blog.
There was a lot of negative press over Black Friday and people pushing and shoving and shouting over reduced price TV’s and I had to wonder, when did we all become so materialistic? I have made no secret of my love of shopping, but I simply cannot be bothered to attempt going out into a bull ring full of aggressive shoppers determined to snap up a bargain. I cannot say that I have not been guilty by the tempting pull of the material stuff, I mean I am still searching for the perfect travelling outfit (It’s nearly there, but must consist of comfort yet class and glamour) and I keep finding the next item I simply must have. But, I do not let it consume me.
There are people in life that would be happy with a safe home, running water and food on the table and want for nothing more, the last thing on their mind would be a bargain TV. Yet we seem to forget this. I work in a job where I am surrounded by sadness, it is hard to work for a cancer charity and not feel it. Because we are still a small charity, we often get involved on a personal level, this is really nice as people fundraising for us can see how much we appreciate it, however, it also means being affected on a daily basis by the complete sadness that comes with people suffering from cancer.
Because of this, I am constantly appreciating what I have in life and being grateful for waking up each day and feeling healthy. But I also know, first hand, what it feels like to feel you are not going to make it and I also know how quickly life can change. I never in a million years ever thought I would have to wear a bag or have a permanent stoma. That was never part of my life plan and certainly not something I would ever have chosen. I know that in an instant, life can change so dramatically it will never be the same again. We take simple things for granted, like having an unblemished stomach, all of our limbs in tact or a body that can help us to live each day, we never expect to have these things change. And as much as people may admire my grit when it comes to living with a bag, I bet each one of them will be feeling so glad it is not them.
Just yesterday I was out with Mike, my sister, her boyfriend and some friends, we were in a pub when I realised I need to empty my bag but the worst happened and I felt like it had leaked. Upon a visit to the toilet it had leaked, now not wanting to go into too much detail, it was very watery, which made it near on impossible to deal with. Fortunately, I have a wonderful sister who came to my rescue and helped me and we got me sorted. I was determined it wouldn’t ruin the rest of my evening and carried on. Yes I got upset but that’s natural. Unfortunately, a bag leak knocks your confidence but you cannot let it stop you getting on with your life, there are worse things that can happen. I have always been honest about how I actually appreciate my bag as it gave me life back, but at times like yesterday I can really hate my bag and feel a bit down that I have it. But I will never feel sorry for myself because, I am alive. I also have so much to be thankful for, a nice home, a good job, lovely friends, an amazing family and a great boyfriend, sometimes I have to pinch myself that life is treating me this well. But as I said earlier, it is so important to appreciate every moment as it can so easily be snatched away, hopefully it won’t but it’s still better to be grateful.
I remember being in hospital before my operation and feeling so dreadfully ill that I actually thought I was dying (In a way I was, the op saved me), and I also remember feeling at peace with it, I always assumed if you were dying through illness it would be really distressing but there was something peaceful and accepting about it. However, all I cared about and all that mattered was knowing I had love in my life and just hoping my family knew how much I love them. There were no regrets, no ‘I wish I had…’ it was all about my loved ones. Nothing material even crossed my mind. Although, I do also remember thinking it would have been nice if I had managed to get in one last glass of champagne (well, this is me!). Fortunately I lived to tell the tale and got to drink my champagne, so I can’t hate my bag, despite the leaks. But I can also appreciate that when all is said and done, all that will matter are your loved ones.
So whatever you are doing, make sure you give your loved ones a big hug tonight, appreciate everything you have and be thankful you get to wake up tomorrow and enjoy life all over again.
I am an odd human being, you see, I am in my 30’s (been in them a while) and I do not have children and nor am I married and this seems to warrant much bewilderment among, well, everyone. It seems it is very unusual indeed to be this person, I don’t think it is, but the way people act you would think that it is as unusual as an Alien landing on Earth. I have a boyfriend and we live together but it seems this isn’t enough in the world of people. I am sure there are many women out there who can relate to this, but I am ALWAYS being asked, ‘when are you getting married?’, ‘do you want to get married?’, ‘do you think he will propose?’ ‘does he want to get married?’ ‘do you think you will have children’ ‘do you want children’…..you get the picture.
Of course it isn’t just me that suffers with these questions, married women without children are asked the child question, married women with 1 child are asked if they want more children, pregnant women are asked when the next one will be. Men do not have this problem, men talk to men about football and boobs and computers. Have you ever seen a man get into conversation with another man and ask him, ‘so then mate, when you having children?’. I am not saying it doesn’t happen but certainly not as frequently as it does for us women.
It seems that you hit your 30’s (I don’t remember it being a frequent problem in my 20’s) and your ovaries are suddenly everyone else’s business. Why do complete strangers feel it is ok to question my marriage and child preferences? Those who have read my blog or who know me, will know that I am not a secretive person, I am very open, perhaps a bit too much sometimes. I would love to be one of those mysterious types, the sort of person others find intriguing because I am such an unknown entity, but sadly I just like to reveal stuff about myself whether or not people want to know!
I am not saying I am completely innocent, I have probably been guilty of asking women myself in the past, but since I have been the subject of much interrogation I am very aware of it and do not ask unless it seems it is appropriate. Plus, who knows what a woman may be going through, how do you know she isn’t trying for a baby but is having difficulty conceiving, bringing up the subject could cause a great deal of upset and hurt.
But what baffles me the most is people’s incessant desire to know such things, is it because they are a bit stressed with their brood and want you to be too, or are they indescribably happy and want you to have the same happiness, or are they just plain nosy? Whatever it is, it drives me crazy and I don’t know what the fascination is. It just seems that unless you are married with two children over the age of 5 you are not immune to the questioning on marriage and children.
What I will say is that I am not married (or engaged, noooo of course this doesn’t bother me ;)! ), but it also means I am not saving for a wedding and can instead spend my money on shoes, clothes and lovely holidays. I will also say that currently I do not have children which means that I can have lovely lie-ins, I can go on holiday on a whim (I would never do that, I can only cope with planned spontaneity, but I could if I wanted!) I can go out to dinner any day of the week without planning it, instead of buying toys I can buy more shoes and clothes and best of all I can drink my beloved bubbly any day of the week if I want to and if I have a hangover, the day is all mine!
I have said for a couple of weeks now that I would talk about my knickers and I really don’t wish to disappoint anyone as I am sure you are all very excited for this 😉
It’s amazing how much publicity there has been recently around girls and guys wearing Ostomy bags and hi-lighting Inflammatory Bowel Diseases (IBD), encouraging people not to be shy and to proudly talk about their bags and/or their IBD. I think this is great and it really is a taboo subject that we should all be more open about. I work for a bowel cancer charity and we are all about raising awareness and encouraging people to talk poo.
But there are times when you might not want to have your bag on show or you may need to cover it up, so what do you do then? Sometimes you just need to keep the bag under control and not have it all wild and free!
Well, like I say it is all about the knickers!! We all wear them (well some may not but that’s up to them!), we all need them, (if nothing else, then just to protect our modesty) and they are an integral part of any outfit. We all know we need the right pair of knickers to make an outfit look good, in this day and age of assorted knicker shapes, vpl’s (visible panty line’s) are inexcusable. How many times have you seen a lovely looking girl with a fab figure wearing a beautiful dress, only to glance at her derriere and realise she has ruined her look with the wrong pair of knickers, the elastic is digging in, she has the dreaded vpl and yet she doesn’t seem to have noticed (good for her, I am not criticizing – well maybe a teeny bit 😉 but if she’s happy then so what?) But the right pair of knickers would just finish off that outfit. This girl obviously wanted to go for sexy thong over Bridget knickers but we all need the Bridget’s at some point!
For general outfits (i.e. no special underwear needed) in my pre-ostomy days I would throw on a lacy thong or some other teeny pair of knickers, without a care in the world, well that was until half way through the day when I wished I hadn’t thrown on the thong with such abandon and had gone for comfort instead. But, knickers weren’t really something I thought about, they were something I would wear (my mum brought me up well) and had to be clean (obviously) but I wouldn’t go and spend copious amounts of money on them. I HATE spending money on underwear, I don’t care how beautiful it is, how wonderfully that bra sits or the matching knickers just look gorgeous, I do not want to spend £50 on them, I would much rather purchase a dress with that money. Let’s face it, yes wearing expensive & matching undies may make us feel wonderful, but only for about 5 minutes before everything starts to dig in and we are yearning to take them off. And if we are wearing the matching set for a nice little boyfriend surprise then again how much value does it bring, where men are concerned, the bra is usually first off before they have even so much glanced at your carefully put together beautiful matching set. Life isn’t like a film, where we find ourselves in several situations which require us to strip down to our underwear, so always sporting sexy co-ordinates isn’t such an issue for everyday life.
Now I know I sound slightly contradictory as I have stated that it is all about the knickers, whilst in the next sentence saying they’re not that high a priority but what I mean is that you need the right knickers for certain outfits but I resent spending lots of money.
However, now I have my Ostomy bag I have become more obsessed with knickers than ever before. I still want to wear tight dresses & tops and other nice clothes and do not wish to be restricted by my bag so the secret is in the knickers. There are a couple of specialist websites for underwear for Ostomy’s here and here which are great but I have also found some fab knickers from Triumph, Littlewoods and Primark. Most days, I can still wear ‘normal’ knickers, having a bag doesn’t stop that but when you want to feel a little more secure and want to flatten the bag and hold it in you need a special knicker! I found some amazing ones in Triumph which were high waisted thongs, so perfect, they even had the matching bra, the discovery of these knickers meant I could wear all my lovely tighter dresses without the vpl safe in the knowledge my bag was secure, even better, they even looked nice, slightly 50’s style, so I didn’t have to feel frumpy either! Unfortunately getting a few pairs has set me back about £150 but I think it is worth it. I cannot believe that I am now willing to spend so much on knickers, but it is important to feel good, and I think whatever your situation, if something makes you feel confident, sexy and happy then it is worth every penny! But if you don’t have a spare £150 hanging around (Mum’s credit card came in handy!) then Primark have fabulous shapewear that is great if you wear a bag and even if you don’t have a bag the knickers are fab anyway, we all need everything to be sucked in sometimes!
Of course there are times when I miss my days of carefree knicker wearing moments, it would be nice not to have to worry about which pair suits which outfit, if today’s dress needs a special pair or if I can wear a pair of jeans and vest without having to wear the more unattractive bigger variety just to have smoother line over the torso, but it is still a small price to pay for being healthy. But, when you wake up tomorrow, still slightly sleepy and just grabbing a pair of knickers from your underwear drawer, spare a moment to feel grateful that you can pick your knickers with such wild abandonment!
And one last thing, is it just me or does anyone else ever pack waaaay to many knickers when going away? I always like a few spares (of course from a practical perspective, I need a spare in case of leaks) but I am definitely OTT with the amount I take, I always have been, I am not sure what I am expecting to happen or why I should need so many spare pairs but I just cannot bring myself to pack ‘just enough’. Men do, if they are away for two nights then they will pack two pairs, exactly what they need, they don’t feel the need for a spare pair, clearly they shouldn’t need them, they are old enough not to have accidents but why do they not feel the need for a ‘just in case’ pair? How can they be so confident and carefree?
So, for now I shall continue to over pack my knickers, run around buying every high waisted thong I see and hope that if you are walking behind me then you are not checking out my derriere to see what knickers I might be wearing!!