Tag Archives: bikinis

Ostomy’s go viral – let’s keep it going

Yesterday was a big day for Ostomates and IBD’ers which is great news and all thanks to a couple of lovely young women. BBC Breakfast did an interview with Rachel Flint (http://adventuresofthebaglady.wordpress.com/) about life with Crohn’s and the fatigue it causes, Rachel spoke openly about her Stoma and how it changed her life for the better, a very positive view on something lots of people see as negative. Unfortunately, the interview was marred by a consultant inferring that Crohn’s is caused by a poor diet (but more of that later). This ‘surprise’ element of the interview was handled very well by Rachel and David from Crohn’s and Colitis Uk http://www.crohnsandcolitis.org.uk/ However, overall Rachel gave a positive view of living with a stoma and at least IBD was brought to the forefront and about time. Rachel’s story and her feedback on the diet issue went viral with so many shares and likes and others offering their experience.

The second positive story of the day was a young woman called Vicky who posted a picture of herself sunbathing on the beach in a bikini with her ostomy bag on full display – good for her and to date the picture has generated over 200,000 likes and goodness knows how many shares but it is more good news for Ostomates. And well done to brave Vicky who also happens to have an amazing body! So all in all a positive day of showing Stoma’s in a positive light and maybe giving hope to others who may be facing life with a stoma for whatever reason.

It has also raised awareness of IBD (Inflammatory Bowel Disease) and hopefully the general public are now more aware of the effects of these types of diseases. Unfortunately I feel that Ulcerative Colitis has become the poor relation, it doesn’t get as much press as Crohn’s and seems to get brushed under the carpet at times. Of course, with Crohn’s getting press other IBD’s will naturally also get an upsurge in awareness but it is a shame that UC isn’t discussed as much as Crohn’s – but still, it’s all baby steps and it’s still good publicity. The difference between Crohn’s and Ulcerative Colitis is the amount of digestive tract that it affects. UC affects the large intestine (right down to the rectum and anus) whereas Crohn’s affects the whole digestive tract (throat, mouth, stomach, small and large intestine etc.). However, both diseases are debilitating, excruciating and embarrassing.

I mentioned the inference that diet could cause IBD and I would just like to say (as many others have) that there is absolutely no scientific evidence to back this up. Many people with IBD have led a healthy life, I grew up on homemade dinners, we didn’t have takeaways and I was an active child. I had symptoms from the age of 16 and yet it took 10 years for me to get a diagnosis, by this point my intestines were so ravaged that the disease was only going to get worse. The problem in my opinion, is not diet related but lack of early diagnosis. Perhaps if doctors would take our symptoms seriously and not send us away with a diagnosis of piles or Irritable Bowel Syndrome we may get help sooner. If my diagnosis was made earlier on then I would have got medication sooner and maybe my large intestine would have stood a fighting chance and maybe, just maybe I wouldn’t be living with a permanent ostomy. This does not make me bitter, I am still glad I have my Stoma, it has changed my life for the better and I am no longer chained to a toilet. But for a medical professional to insinuate we have brought these diseases on ourselves with a poor diet, is quite frankly insulting. Of course diet affects us and our bodies, we should have a healthy balanced diet, with plenty of fresh fruit and veg and the treats limited but we shouldn’t be made to feel that the odd trip to a fast food restaurant caused us to have a debilitating condition. IBD is an Auto-Immune Disorder, this means the body turns on itself and attacks healthy tissue, there is yet to be more research done to know what does cause it.

So all in all, despite the ‘diet’ issue, yesterday was a great day for people with IBD and stomas and I want to keep that going, let’s share the blogs, the pictures and the posts. Let’s quell the idea that stomas are for old people (I used to think this too, I used to joke about having a bag when I was older because of my UC) and let’s give hope to people facing having to have one, it’s not just people with IBD but people with Bowel Cancer may face a stoma too.

And you know what, you can wear whatever the hell you like, as those who follow me and read my blog know, I have never been shy about sharing the fact I wear a bag and often like to show people! The only reason I don’t share so many bikini pics is not because I am ashamed of my bag but because I am no supermodel, I don’t have a rocking bod, and no matter how much I work out and eat well I still feel I could be a good half a stone lighter (and I certainly look nowhere near as good as the beautiful Vicky). But my body got me through a tough time and I try to be proud of it but when faced with pictures on an hourly basis of people with amazing bodies it is hard not to have a negative body image (ironic that it’s my figure that bothers me not the stoma!) But as I bleat on about raising awareness and being proud of what you have then I should practice what I preach and show you what I have! Sherrill Bikini

Time to go shopping!!

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When I was first told I would need a stoma I cried, yes a little bit of it was because I was worried and nervous, but the main reason I was so sad was because I had just been shopping to Bluewater and thought of those lovely clothes that may never see the light of day!! There are parts of my hospital stays which are blurry, but I definitely remember saying, through a barrage of tears “but I, I, I.have just been shoooppping” – cue more tears. I think probably most women will understand this, it is such an important and necessary part of our lives. Shopping is to us what football is to men, unfortunately we don’t have regular 90 minute programmes about it which is of course why we must therefore, shop in person regularly instead. As it turns out the stoma didn’t stop me wearing any of the clothes I bought, it was only the cropped tops that had to go (only joking, I haven’t worn a crop top since I was about 20!!). It was a lovely excuse to go out and buy more clothes that were suitable for my recovery, then there was the ‘I am fully recovered celebration’ shopping spree, the ‘I am going on holiday’ shopping spree…you get the picture. 

I am very fortunate that in my life I have two wonderful people who positively encourage my shopping. One is my mum, sometimes referred to by my sister (who is also wonderful but that will always go without saying) and me as ‘Bank of Mum’. Oh it is so wonderful and envied by many, we go shopping with mum and she says to us to “put in on my credit card as it won’t need paying for x amount of time” (usually a good payday away). We question an item and what colour should we get it in to which we hear the joyous cries of ‘get it in both you can put it on my credit card’. Yes it is wonderful and fantastic for the wardrobe, not so wonderful when payday actually comes around and you have to pay for the 2 tops in 2 different colours you are now bored of! Mum taught my sister and I well in the art of shopping, perhaps she could have better prepared us by teaching us the art of buying property, but as mum says “when the going gets tough, the tough go shopping”!

The other wondrous shopping companion is Mike, also handy with his credit card (I even get away without paying it back – crafty) but what is more fabulous is his love of high heels (not on himself and not in weird foot fetish way, well not that I know of!) and his surprise that us girls can get them at such bargain prices. He also positively encourages my shopping and doesn’t bat an eyelid when I proclaim that I must have a new dress, he just tells me to do it – isn’t that fantastic?

My latest obsession (apart from dresses and high heels) is bikinis and swimsuits, River Island do an amazing range and I can’t keep away. Great for us girls with a stoma, now just because you have a stoma doesn’t mean you can’t wear ‘normal’ bikinis, I am not ashamed of my stoma and am happy to have it in the open. However, on holiday, when swimming and sunbathing, I just feel more secure with a high waisted bikini or a cut out swimsuit. I love the swimsuits that look like a bikini from the back but cover the tummy and I am so glad all the high waist clothing is in fashion. Trouble is I have enough swimwear to last me a month’s holiday but I still can’t stop buying it every time I see a new suitable garment, always coupled with the excuse that ‘I should get it whilst I see it’ (a mummyism). 

Despite the fact that mum and Mike make good shopping companions, I love a good shop with my sister, this is usually because a shopping trip ends up with cocktails in a bar. Unfortunately we get more reckless – not with the shopping (isn’t tipsy shopping great?) it’s usually the fact that we are surrounded by bags that we decide a few extra pounds on extravagant cocktails and ‘oh we may as well just get the champagne, it’s no more expensive’ can be justified, as after all it won’t make much difference to the overall spending!

Of course none of this is great for my bank balance or my bulging wardrobes, but who cares, shopping it is too much fun to stop. So I must sign off as I have a code for free next day delivery and I have seen a dress I really need…..

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