Tag Archives: Crohn’s

Bollocks to the salad…

Is what I thought a couple of weeks ago when I decided to try and lose a couple of pounds for my impending holiday.

A bit of background, the last couple of months at work have been hectic to say the least, I have probably been away more than I have been at home and have basically been living out of a hotel (does a Travelodge count as a hotel?!) and a suitcase. It’s really, really hard to maintain a healthy lifestyle  when you are away so much, I really do try but sometimes the urge to give into the wine or the chocolate after a long arsed day is too much.

With only a few weeks until my holiday I decided to take action and up the health and fitness regime to shift those additional pounds that crept on. I was still working away lots and before I knew it I had 17 days to go. I can do this I thought, I will just give up everything that is nice and fun and tasty until I go away, it’s easy, I can eat mainly salad and veg and not drink wine for 17 days. I lasted 5 days, (go me!) until my sister text to say they were having Pimms in the garden and I was invited! And then I just thought, bollocks to the salad, I cannot be arsed to keep depriving myself because I am 2-3 pounds heavier than I want to be.

In the few days before the lure of the Pimms, I was miserable, I was hungry and felt tired and cranky. I just couldn’t do it to myself anymore. I’m bored of feeling bad about myself because I had potatoes for dinner or a sandwich instead of a salad for lunch. I am bored of feeling like a rabbit because all I seem to do is crunch bloody crunch all day long. I am tired of exercising iron clad willpower when it comes to not eating a biscuit or a piece of chocolate (I am still waiting for that will power to come to the surface in the face of wine!). I am fed up of trying to haul myself out of bed every morning to spend an hour in the gym and feeling guilty when I don’t.

Don’t get me wrong, I live a healthy lifestyle and enjoy doing so, I want to give my body nourishment and strengthen it so it can deal with life’s curve-balls. But I don’t want to live a life of restriction that never includes a chocolate hobnob again.

I do not want to saute my broccoli, I don’t even know what sauteing is – isn’t it just a fancy word for frying?? I don’t want to eat kale and cous cous for lunch or to have to marinade my chicken for 4 hours for it to be tasty. That is why Marks and Spencer exists – so people like me can throw our veg in the microwave. I don’t like avocado and even if I did I wouldn’t want it for breakfast, I don’t want to snack on 5 almonds or take my Tupperware dish everywhere I go. So I said bollocks to it and decided that I would try to feel OK with the little extra padding and be happy instead. And weirdly enough, when  you stop stressing about food and let go a little bit your body rewards you with feeling better. I think my mum describes it perfectly –  I asked her what she had for her dinner one night and she replied with “a shit boring salad, I might just have fish and chips”!! Don’t get me wrong, I am not going to dive head first into a vat of donuts (no matter how much I want to) but I am just going to try and relax a little, maybe try thinking about my body in a positive manner instead of hating it. After all, it kept me alive during the most grueling of times and it now keeps me healthy, so I really ought to be grateful to it.

Tomorrow is the day I go away to sunny Crete and you know what, rather than stressing over my body not being the same as it was when I went away last year, I am going to enjoy the fact that I am able to go on holiday, that I can travel, that I can feel the sun on my face and make more memories with Mike, you know the important stuff. It’s a long process, trying to come to terms with your body, especially when you have an Ostomy, but I am going to really try. I have naturally ordered  champagne for my outward flight tomorrow and I may just raise a glass to my shit boring salad!!

 

Salad 2

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Oops! 

Oops, it’s been totally ages since I last blogged and yet I never meant to go this long. I wish I was one of those people that blogged regularly, but I also wish I was one of those people that got up at 6am to work out, or one of those people that didn’t like wine (do they exist?) or one of those people that ate broccoli for breakfast (wtf?)  but somethings are just never going to happen! 

  

I always get inspiration when I’m driving in my car or some other such inconvenient place and by the time I can write it down I forget! But I’m sitting here on the sofa, whilst Mike watches footie (not for the first time) so decided to ‘be productive’. There are lots of things I could write about and I will ( in a few months or so ;-)!) but I thought I would start with being able to help people. 

I want to and will, talk about clothes with an ostomy (short version, wear whatever the hell you like), travel ( it’s fine, do it), exercise (if you’re so inclined, that too is ok) food ( trial and error but give it all a go within reason). I’ll go into more detail in other posts. 

Those that know me/read my blog/follow my Facebook page know that I work for Beating Bowel Cancer Charity. It keeps me incredibly busy but I love it. April is Bowel cancer awareness month and during this time we hold a ‘patient day’ where we invite people affected to a free event. They can meet other people in similar situations, talk to nurses, attend seminars, visit the stands and just generally meet staff and supporters. It’s a great day and people seem to really love it. What’s great is being able to talk to people who also have an ostomy, some have colostomies, some have ileostomys, some don’t have a stoma anymore but did. It’s really lovely to have people come up to me and ask me about mine and ask me questions. Some people I have spoken to over Twitter and was able to meet in person and share stories.

I love that I can work for a charity and have empathy and can share my positive experiences with people going through a really tough time. But I also benefit, I also get to meet people with ostomies and hear their experiences and so many of them are incredibly upbeat, despite having to face some of the toughest times of their lives. 

I am always happy for people to approach me and ask me questions and advice and I will always be honest. I have no issue with anyone, stoma or not, asking me questions about mine. I find it far easier to be open and hope my experiences can help others. 

So, this is just to say the blog is back in action, and between 6am gym sessions and breakfasts of broccoli 😂 I shall be posting a bit more regularly!  

 

Then and now…..

Today is the 4th anniversary of my stoma and of course it’s a day I will never forget so I think it is appropriate to mark the occasion. It was the day that would change my life for ever

Sometimes, the truth of it is that having a stoma does get me down now and then. It is hard for friends and family to understand (as great and supportive as they are) as they just see me as being healthy now and that is all that matters. But, despite the positives, having a stoma is bound to have an effect on how you feel, your body image and the problems that can come with it. But, rather than talk about being down, I figured why not compare my life to pre-bag and post-bag and see the difference?

Now, I am not saying that some of the things I have now I wouldn’t have had anyway, but a major life change can cause you to reassess your life and for things to change in ways you never though possible! So here goes…..

Pre_bag (during my Ulcerative Colitis days and before 2011)

  • I had an incredibly stressful job that took up a lot of my time, didn’t allow for me to look after myself physically or mentally and I worked a lot of hours.
  • I was unfit, exercising was off the table when one wrong move could cause me to poo myself, plus the general exhaustion from being unwell made it difficult.
  • I ate what I was able to not what was necessarily healthy.
  • I was on a concoction of strong medication, painkillers and was self-administering twice daily enemas (how glamorous!).
  • Relationships were tricky and let’s just say I didn’t always make the best choice, so I was either single or in a not so great romantic liaison.
  • Travelling/going to social occasions (e.g. concerts) was a minefield and far too stressful due to the constant worry of an accessible toilet.
  • I lived in a rented flat
  • I drove an old car
  • I didn’t have pets
  • I hadn’t been on a holiday since 2009 and didn’t have many weekends/days away

Fast forward to post-bag (and after 2011) and this is what I have

(A few pics of me now)

11709743_1617193738568927_5346085487256939301_n 10999582_1617193618568939_6528230031222443973_n 11108678_1590692264552408_8607098282259252005_n 11214163_1616377621983872_823989813056197957_n 11257961_1605933399694961_2010174981709038020_n

  • A job that I love, where I work from home and travel around the South East, I get the best of both worlds, there is a good work/life balance and because it’s a bowel cancer charity I can offer my experiences as well as fight for a very worthy cause.
  • I am so much fitter than I have ever been. This year I have managed to run a sub 60 minute 10k and a sub 30 minute 5k, plus I have been lifting weights since January and the amount I can lift has increased. Working out has become a part of my daily life and I feel so much better for it (my body has had some nice changes too – bonus!).
  • I eat whatever I want to, but am choosing to eat healthily and I have never felt so good, with so much energy. In fact, I never thought I would see the day, but I have almost gone off pizza, unfortunately the same can’t be said for my wine habit 😉
  • I don’t take any medication at all, apart from the odd Alka Seltzer after a night out ;). Or the occasional ibuprofen for normal niggles.
  • I have an amazing boyfriend, we had only been on a handful dates when I was taken into hospital, but he stuck around and 4 years later we are still together. We have a lot of fun, respect each other, make time for each other, he looks after me and I look after him and it is a GREAT relationship.
  • I have had holidays (yay) and weekends away, spa days/weekends, concerts, theatres, parties, girlie holidays, day trips and so on and I couldn’t be more appreciative. In fact I am off on holiday next week and I can’t wait.
  • I now live in a house with my boyfriend Mike and we have another property we rent out.
  • I have a nice new car.
  • I have two very cute and very mischievous kitties.

Of course my wonderful friends and family haven’t changed and have been there through it all which I am most grateful for.

So, it really helps to look at all the good stuff and what I have been able to achieve, things that once were so difficult or seemed impossible are now just part of my life. If you are going through a hard time or having to face something difficult, just remember, as much as life can change for the worse in a blink of an eye it can always change for the better just as quickly.

So, happy anniversary to me and the stoma that not only gave my life back but improved it too.

 

Cheers!

Life change

Spread a little Christmas love………

These past few days of Christmas have got me thinking. These modern days are unfortunately, so full of consumerism and greed, people are queuing for the sales at 5am on Boxing Day and poor retail staff are barely getting a day off to enjoy Christmas. At what point did the material things in life outweigh spending time with loved ones? For those who have lost loved ones, I am sure they would trade all the presents in the world if it meant one more Christmas day with them, so why are we still so fixated on ‘getting a bargain’ rather than personal time? Would we rather spend Christmas day glued to our phones waiting for the next sale item to pop up, before going to bed at 10pm ready to get up at 5am to hit the sales than spend it ‘in the moment’? I know I would rather turn my phone off for the day and enjoy the time with my loved ones, playing silly board games, laughing, having to dive through 3 black sacks of wrapping paper because someone thinks they threw away a gift voucher, not arguing over the best chocolates in the Roses tin (as I am the only one who likes the creams, yay for me!) and deciding who’s turn it is to make the 10th cup of tea of the day. I am not going to deny my love of shopping but I know when to draw the line and when family time is priority. I could harp on for hours on this subject as it makes me so cross that everywhere is consumed with greed, shouldn’t we just incorporate some simple measures back into our lives? Far better to have a lived a life full of love and friendship than be surrounded by gadgets, clothes and a cold heart.

Christmas love

A lot of my Christmases’ were marred by my Ulcerative Colitis, rushing to the toilet in between trying to eat a bit of turkey all whilst plastering a smile on my face for the sake of my family. When you have a debilitating illness, part of it is putting on a front as you don’t want others to know how unwell you really are, partly because you don’t want to worry them or spoil their day but partly because you don’t actually want to believe it yourself.  In 2010 I spent Christmas eve in hospital but luckily wasn’t admitted, in 2011 I was really excited for Christmas as it was 4 months post-op and I knew I would be able to enjoy it. Unfortunately, a hazard of having no large bowel is the risk of blockages, (comes with the territory, especially in the early days, you learn to manage it). A bit of steak on Christmas eve resulted in immense pain and a blockage on Christmas day (my sister had even removed the fibrous parts from the parsnips so I could enjoy them and I never got to eat them!) so off mum and I went to A&E, but I only walked around the car park for a bit as I really didn’t want to go in! Eventually I decided I was well enough but had to spend most of the rest of day sleeping. Christmas 2012 was ok but my 2nd op in early January was looming upon me so played on my mind a bit. Then in 2013 I came down with a dreaded virus, I knew I wasn’t right when a bottle of champagne I opened on Christmas Eve lasted me for hours! I luckily got through Christmas day and just about managed Boxing Day before succumbing and spending 4 days in bed.

Despite all that, I still consider myself incredibly lucky as having no bowel and an ostomy bag has meant I am here to enjoy the time with my family and friends and there are so many people out there who don’t get that opportunity. I am also determined that this Christmas there will be no A&E, no steak, no virus and the champagne will slide down a bit quicker!!

If you are having a hard time this Christmas, for whatever reason, try and take what good you can from it and have faith that things can get better.  And for all of us, put down the phone, spend a bit longer with loved ones, go back to basics, argue over monopoly and the purple sweets and how about giving the sales a miss on boxing day and snuggling up with hot chocolates and silly films instead?

And on that note, all that leaves me to say is, whatever you are doing and wherever you are,  make it a good one and have a very merry Christmas and New Year! x

Snowmen

The important things in life……

Over the last couple of months, there has been lots going on in my life and yet I still seemed to have had writers block and not been able to come up with a post, despite always saying I would definitely write weekly! But certain things have taken place this week and it has made me think and given me some inspiration for my blog.

There was a lot of negative press over Black Friday and people pushing and shoving and shouting over reduced price TV’s and I had to wonder, when did we all become so materialistic? I have made no secret of my love of shopping, but I simply cannot be bothered to attempt going out into a bull ring full of aggressive shoppers determined to snap up a bargain. I cannot say that I have not been guilty by the tempting pull of the material stuff, I mean I am still searching for the perfect travelling outfit (It’s nearly there, but must consist of comfort yet class and glamour) and I keep finding the next item I simply must have. But, I do not let it consume me.

There are people in life that would be happy with a safe home, running water and food on the table and want for nothing more, the last thing on their mind would be a bargain TV. Yet we seem to forget this. I work in a job where I am surrounded by sadness, it is hard to work for a cancer charity and not feel it. Because we are still a small charity, we often get involved on a personal level, this is really nice as people fundraising for us can see how much we appreciate it, however, it also means being affected on a daily basis by the complete sadness that comes with people suffering from cancer.

Because of this, I am constantly appreciating what I have in life and being grateful for waking up each day and feeling healthy. But I also know, first hand, what it feels like to feel you are not going to make it and I also know how quickly life can change. I never in a million years ever thought I would have to wear a bag or have a permanent stoma. That was never part of my life plan and certainly not something I would ever have chosen. I know that in an instant, life can change so dramatically it will never be the same again. We take simple things for granted, like having an unblemished stomach, all of our limbs in tact or a body that can help us to live each day, we never expect to have these things change. And as much as people may admire my grit when it comes to living with a bag, I bet each one of them will be feeling so glad it is not them.

Just yesterday I was out with Mike, my sister, her boyfriend and some friends, we were in a pub when I realised I need to empty my bag but the worst happened and I felt like it had leaked. Upon a visit to the toilet it had leaked, now not wanting to go into too much detail, it was very watery, which made it near on impossible to deal with. Fortunately, I have a wonderful sister who came to my rescue and helped me and we got me sorted. I was determined it wouldn’t ruin the rest of my evening and carried on. Yes I got upset but that’s natural. Unfortunately, a bag leak knocks your confidence but you cannot let it stop you getting on with your life, there are worse things that can happen. I have always been honest about how I actually appreciate my bag as it gave me life back, but at times like yesterday I can really hate my bag and feel a bit down that I have it. But I will never feel sorry for myself because, I am alive. I also have so much to be thankful for, a nice home, a good job, lovely friends, an amazing family and a great boyfriend, sometimes I have to pinch myself that life is treating me this well. But as I said earlier, it is so important to appreciate every moment as it can so easily be snatched away, hopefully it won’t but it’s still better to be grateful.

I remember being in hospital before my operation and feeling so dreadfully ill that I actually thought I was dying (In a way I was, the op saved me), and I also remember feeling at peace with it, I always assumed if you were dying through illness it would be really distressing but there was something peaceful and accepting about it. However, all I cared about and all that mattered was knowing I had love in my life and just hoping my family knew how much I love them. There were no regrets, no ‘I wish I had…’ it was all about my loved ones. Nothing material even crossed my mind. Although, I do also remember thinking it would have been nice if I had managed to get in one last glass of champagne (well, this is me!). Fortunately I lived to tell the tale and got to drink  my champagne, so I can’t hate my bag, despite the leaks. But I can also appreciate that when all is said and done, all that will matter are your loved ones.

So whatever you are doing, make sure you give your loved ones a big hug tonight, appreciate everything you have and be thankful you get to wake up tomorrow and enjoy life all over again.

Thankful

 

Woooo I did it!

That was the 10K run on Sunday, where Mike and I ran for Beating Bowel Cancer in the Run to the Beat event in Wembley. It was our second 10k of the year, which in itself is shocking, as I never even thought I would do one, let alone 2 but it was a good goal to work towards. Now, I certainly wasn’t as fit or in as good shape as I was for our Bupa 10k, the training kind of fell by the wayside over Summer as I preferred to drink bubbly in the garden than go out and exercise, but I was pretty confident I could run the course.

That was until we received the race pack only to find out the course had some hilly parts, I was actually relying on a nice flat course thinking this would get me round quicker, but nope, wonderful hills awaited us. But still, I thought I could still run the 10k with hills, if a little slower.

On the Friday and Saturday before race day I had been to Surrey for work, so lots of travelling and walking (you can see the excuses forming!) and no time for short training runs. On race day, we were up at 5.30am to ensure we could get to Wembley in time. A quick banana and some water en route and we’re raring to go. A quick toilet stop for me (all Portaloos) only to discover my bag had leaked, this is a fairly rare occurrence, stoma appliances are pretty good and tend to be quite hardy. However, every now and then a leak happens and you just have to deal with it as best you can. Always having a change of bags and a clean pair of knickers on your person is usually a good idea (a clean pair of knickers is never a bad idea even if you don’t have a stoma, that and a toothbrush, you just never know!). Fortunately I had caught the leak before it got too bad and had a change of bag. Changing my bag in a Portaloo toilet is not something I wish to experience again, not particularly easy but I managed. I think it affected me psychologically though and something seemed to switch mentally despite my positive pep talk to myself. I also had a foot injury from a run the week before but was determined to run anyway as it didn’t feel that bad.

So, the race starts and we’re away, Mike is in a different group to me (the faster ones!) so I know he is well away before I have started. I did the first 1k ok, as it was all downhill and then it all just went horribly wrong. I had a stitch, I had to stop at 5k for first aid because my toes were covered in blood, I would like to be dramatic and say it was a huge gash in my toes caused by fast running but it was just a tiny cut that bled a lot! Then after that point it seemed to be all uphill, horrible steep mountains which just felt impossible. But I hobbled, jogged & walked and eventually got round. Perhaps if someone had yelled that there was a bottle of champagne at the finish line I may have got a sprint on, but it was just a few cheerers trying to encourage us slow ones (it’s a bit embarrassing) across the finish line. But at least I can say ‘Wooooo I did it!’

Mike did incredibly well, me, not so good, but I was determined to finish the course no matter what. I actually hated every minute of it but I think I may do it again next year, just to improve my time (which won’t be hard) and because it will also seem like a good idea at the time.

You will be relieved to hear that the champagne came out upon arriving home, followed by a very delicious burger, so all was not lost. Now, I have 7 weeks until the next 10K, and I am DETERMINED to do this one well!

homer

The running bug hasn’t quite caught me yet..

I am participating in my second 10k event this Sunday, which isn’t bad for someone, who until this year, had barely taken a brisk walk, let alone a run. However, I did it (just check out my previous blogs) and I have decided to do another one. This time it is Run to the Beat in Wembley, apparently there is a hill in the route, I was rather banking on a flat course as, let’s face it, it is much less traumatic to have a continuous flat path.

I am in nowhere near as good shape as I was back in May and have let the running slide somewhat. After getting back from holiday in June, I spent weeks thinking about getting back to it but decided a cold glass of bubbly in the garden was a much more inviting idea. So I signed up for another 10k to get me motivated again. Everyone says that you get the running bug, especially after your first event, so why I am still waiting to catch it? So, I have also signed up to a local 10K at the start of November, I figure having another one to do will keep me out running and prevent me from lazing on the sofa. It will be 3 in total this year which is a great achievement for me. Mike is also running both of these too but he is much more motivated and sporty than me.

You may think that I must have caught the running bug to have signed up to a further two 10K’s but I really haven’t. I don’t particularly enjoy running and I am not really that good at it, so why am I doing it? I think I am still hoping I may catch that elusive bug, but it also goes hand in hand with my continuous diet and desire to lose weight. Even though I dislike it and I pant and puff my way around and want to stop at every moment, I do feel good when I’ve done it, I like the achievement of having improved my time or had a run that didn’t feel like I was going to die at every moment. Sometimes, it’s just enough to know I have overtaken the walking people.

For now, I will aim to my complete my next 10k as fast as I can (hills pending) and will let you know how I get on and if the running bug manages to catch me.

Running