Category Archives: Champagne

Bollocks to the salad…

Is what I thought a couple of weeks ago when I decided to try and lose a couple of pounds for my impending holiday.

A bit of background, the last couple of months at work have been hectic to say the least, I have probably been away more than I have been at home and have basically been living out of a hotel (does a Travelodge count as a hotel?!) and a suitcase. It’s really, really hard to maintain a healthy lifestyle  when you are away so much, I really do try but sometimes the urge to give into the wine or the chocolate after a long arsed day is too much.

With only a few weeks until my holiday I decided to take action and up the health and fitness regime to shift those additional pounds that crept on. I was still working away lots and before I knew it I had 17 days to go. I can do this I thought, I will just give up everything that is nice and fun and tasty until I go away, it’s easy, I can eat mainly salad and veg and not drink wine for 17 days. I lasted 5 days, (go me!) until my sister text to say they were having Pimms in the garden and I was invited! And then I just thought, bollocks to the salad, I cannot be arsed to keep depriving myself because I am 2-3 pounds heavier than I want to be.

In the few days before the lure of the Pimms, I was miserable, I was hungry and felt tired and cranky. I just couldn’t do it to myself anymore. I’m bored of feeling bad about myself because I had potatoes for dinner or a sandwich instead of a salad for lunch. I am bored of feeling like a rabbit because all I seem to do is crunch bloody crunch all day long. I am tired of exercising iron clad willpower when it comes to not eating a biscuit or a piece of chocolate (I am still waiting for that will power to come to the surface in the face of wine!). I am fed up of trying to haul myself out of bed every morning to spend an hour in the gym and feeling guilty when I don’t.

Don’t get me wrong, I live a healthy lifestyle and enjoy doing so, I want to give my body nourishment and strengthen it so it can deal with life’s curve-balls. But I don’t want to live a life of restriction that never includes a chocolate hobnob again.

I do not want to saute my broccoli, I don’t even know what sauteing is – isn’t it just a fancy word for frying?? I don’t want to eat kale and cous cous for lunch or to have to marinade my chicken for 4 hours for it to be tasty. That is why Marks and Spencer exists – so people like me can throw our veg in the microwave. I don’t like avocado and even if I did I wouldn’t want it for breakfast, I don’t want to snack on 5 almonds or take my Tupperware dish everywhere I go. So I said bollocks to it and decided that I would try to feel OK with the little extra padding and be happy instead. And weirdly enough, when  you stop stressing about food and let go a little bit your body rewards you with feeling better. I think my mum describes it perfectly –  I asked her what she had for her dinner one night and she replied with “a shit boring salad, I might just have fish and chips”!! Don’t get me wrong, I am not going to dive head first into a vat of donuts (no matter how much I want to) but I am just going to try and relax a little, maybe try thinking about my body in a positive manner instead of hating it. After all, it kept me alive during the most grueling of times and it now keeps me healthy, so I really ought to be grateful to it.

Tomorrow is the day I go away to sunny Crete and you know what, rather than stressing over my body not being the same as it was when I went away last year, I am going to enjoy the fact that I am able to go on holiday, that I can travel, that I can feel the sun on my face and make more memories with Mike, you know the important stuff. It’s a long process, trying to come to terms with your body, especially when you have an Ostomy, but I am going to really try. I have naturally ordered  champagne for my outward flight tomorrow and I may just raise a glass to my shit boring salad!!

 

Salad 2

Then and now…..

Today is the 4th anniversary of my stoma and of course it’s a day I will never forget so I think it is appropriate to mark the occasion. It was the day that would change my life for ever

Sometimes, the truth of it is that having a stoma does get me down now and then. It is hard for friends and family to understand (as great and supportive as they are) as they just see me as being healthy now and that is all that matters. But, despite the positives, having a stoma is bound to have an effect on how you feel, your body image and the problems that can come with it. But, rather than talk about being down, I figured why not compare my life to pre-bag and post-bag and see the difference?

Now, I am not saying that some of the things I have now I wouldn’t have had anyway, but a major life change can cause you to reassess your life and for things to change in ways you never though possible! So here goes…..

Pre_bag (during my Ulcerative Colitis days and before 2011)

  • I had an incredibly stressful job that took up a lot of my time, didn’t allow for me to look after myself physically or mentally and I worked a lot of hours.
  • I was unfit, exercising was off the table when one wrong move could cause me to poo myself, plus the general exhaustion from being unwell made it difficult.
  • I ate what I was able to not what was necessarily healthy.
  • I was on a concoction of strong medication, painkillers and was self-administering twice daily enemas (how glamorous!).
  • Relationships were tricky and let’s just say I didn’t always make the best choice, so I was either single or in a not so great romantic liaison.
  • Travelling/going to social occasions (e.g. concerts) was a minefield and far too stressful due to the constant worry of an accessible toilet.
  • I lived in a rented flat
  • I drove an old car
  • I didn’t have pets
  • I hadn’t been on a holiday since 2009 and didn’t have many weekends/days away

Fast forward to post-bag (and after 2011) and this is what I have

(A few pics of me now)

11709743_1617193738568927_5346085487256939301_n 10999582_1617193618568939_6528230031222443973_n 11108678_1590692264552408_8607098282259252005_n 11214163_1616377621983872_823989813056197957_n 11257961_1605933399694961_2010174981709038020_n

  • A job that I love, where I work from home and travel around the South East, I get the best of both worlds, there is a good work/life balance and because it’s a bowel cancer charity I can offer my experiences as well as fight for a very worthy cause.
  • I am so much fitter than I have ever been. This year I have managed to run a sub 60 minute 10k and a sub 30 minute 5k, plus I have been lifting weights since January and the amount I can lift has increased. Working out has become a part of my daily life and I feel so much better for it (my body has had some nice changes too – bonus!).
  • I eat whatever I want to, but am choosing to eat healthily and I have never felt so good, with so much energy. In fact, I never thought I would see the day, but I have almost gone off pizza, unfortunately the same can’t be said for my wine habit 😉
  • I don’t take any medication at all, apart from the odd Alka Seltzer after a night out ;). Or the occasional ibuprofen for normal niggles.
  • I have an amazing boyfriend, we had only been on a handful dates when I was taken into hospital, but he stuck around and 4 years later we are still together. We have a lot of fun, respect each other, make time for each other, he looks after me and I look after him and it is a GREAT relationship.
  • I have had holidays (yay) and weekends away, spa days/weekends, concerts, theatres, parties, girlie holidays, day trips and so on and I couldn’t be more appreciative. In fact I am off on holiday next week and I can’t wait.
  • I now live in a house with my boyfriend Mike and we have another property we rent out.
  • I have a nice new car.
  • I have two very cute and very mischievous kitties.

Of course my wonderful friends and family haven’t changed and have been there through it all which I am most grateful for.

So, it really helps to look at all the good stuff and what I have been able to achieve, things that once were so difficult or seemed impossible are now just part of my life. If you are going through a hard time or having to face something difficult, just remember, as much as life can change for the worse in a blink of an eye it can always change for the better just as quickly.

So, happy anniversary to me and the stoma that not only gave my life back but improved it too.

 

Cheers!

Life change

Spread a little Christmas love………

These past few days of Christmas have got me thinking. These modern days are unfortunately, so full of consumerism and greed, people are queuing for the sales at 5am on Boxing Day and poor retail staff are barely getting a day off to enjoy Christmas. At what point did the material things in life outweigh spending time with loved ones? For those who have lost loved ones, I am sure they would trade all the presents in the world if it meant one more Christmas day with them, so why are we still so fixated on ‘getting a bargain’ rather than personal time? Would we rather spend Christmas day glued to our phones waiting for the next sale item to pop up, before going to bed at 10pm ready to get up at 5am to hit the sales than spend it ‘in the moment’? I know I would rather turn my phone off for the day and enjoy the time with my loved ones, playing silly board games, laughing, having to dive through 3 black sacks of wrapping paper because someone thinks they threw away a gift voucher, not arguing over the best chocolates in the Roses tin (as I am the only one who likes the creams, yay for me!) and deciding who’s turn it is to make the 10th cup of tea of the day. I am not going to deny my love of shopping but I know when to draw the line and when family time is priority. I could harp on for hours on this subject as it makes me so cross that everywhere is consumed with greed, shouldn’t we just incorporate some simple measures back into our lives? Far better to have a lived a life full of love and friendship than be surrounded by gadgets, clothes and a cold heart.

Christmas love

A lot of my Christmases’ were marred by my Ulcerative Colitis, rushing to the toilet in between trying to eat a bit of turkey all whilst plastering a smile on my face for the sake of my family. When you have a debilitating illness, part of it is putting on a front as you don’t want others to know how unwell you really are, partly because you don’t want to worry them or spoil their day but partly because you don’t actually want to believe it yourself.  In 2010 I spent Christmas eve in hospital but luckily wasn’t admitted, in 2011 I was really excited for Christmas as it was 4 months post-op and I knew I would be able to enjoy it. Unfortunately, a hazard of having no large bowel is the risk of blockages, (comes with the territory, especially in the early days, you learn to manage it). A bit of steak on Christmas eve resulted in immense pain and a blockage on Christmas day (my sister had even removed the fibrous parts from the parsnips so I could enjoy them and I never got to eat them!) so off mum and I went to A&E, but I only walked around the car park for a bit as I really didn’t want to go in! Eventually I decided I was well enough but had to spend most of the rest of day sleeping. Christmas 2012 was ok but my 2nd op in early January was looming upon me so played on my mind a bit. Then in 2013 I came down with a dreaded virus, I knew I wasn’t right when a bottle of champagne I opened on Christmas Eve lasted me for hours! I luckily got through Christmas day and just about managed Boxing Day before succumbing and spending 4 days in bed.

Despite all that, I still consider myself incredibly lucky as having no bowel and an ostomy bag has meant I am here to enjoy the time with my family and friends and there are so many people out there who don’t get that opportunity. I am also determined that this Christmas there will be no A&E, no steak, no virus and the champagne will slide down a bit quicker!!

If you are having a hard time this Christmas, for whatever reason, try and take what good you can from it and have faith that things can get better.  And for all of us, put down the phone, spend a bit longer with loved ones, go back to basics, argue over monopoly and the purple sweets and how about giving the sales a miss on boxing day and snuggling up with hot chocolates and silly films instead?

And on that note, all that leaves me to say is, whatever you are doing and wherever you are,  make it a good one and have a very merry Christmas and New Year! x

Snowmen

The important things in life……

Over the last couple of months, there has been lots going on in my life and yet I still seemed to have had writers block and not been able to come up with a post, despite always saying I would definitely write weekly! But certain things have taken place this week and it has made me think and given me some inspiration for my blog.

There was a lot of negative press over Black Friday and people pushing and shoving and shouting over reduced price TV’s and I had to wonder, when did we all become so materialistic? I have made no secret of my love of shopping, but I simply cannot be bothered to attempt going out into a bull ring full of aggressive shoppers determined to snap up a bargain. I cannot say that I have not been guilty by the tempting pull of the material stuff, I mean I am still searching for the perfect travelling outfit (It’s nearly there, but must consist of comfort yet class and glamour) and I keep finding the next item I simply must have. But, I do not let it consume me.

There are people in life that would be happy with a safe home, running water and food on the table and want for nothing more, the last thing on their mind would be a bargain TV. Yet we seem to forget this. I work in a job where I am surrounded by sadness, it is hard to work for a cancer charity and not feel it. Because we are still a small charity, we often get involved on a personal level, this is really nice as people fundraising for us can see how much we appreciate it, however, it also means being affected on a daily basis by the complete sadness that comes with people suffering from cancer.

Because of this, I am constantly appreciating what I have in life and being grateful for waking up each day and feeling healthy. But I also know, first hand, what it feels like to feel you are not going to make it and I also know how quickly life can change. I never in a million years ever thought I would have to wear a bag or have a permanent stoma. That was never part of my life plan and certainly not something I would ever have chosen. I know that in an instant, life can change so dramatically it will never be the same again. We take simple things for granted, like having an unblemished stomach, all of our limbs in tact or a body that can help us to live each day, we never expect to have these things change. And as much as people may admire my grit when it comes to living with a bag, I bet each one of them will be feeling so glad it is not them.

Just yesterday I was out with Mike, my sister, her boyfriend and some friends, we were in a pub when I realised I need to empty my bag but the worst happened and I felt like it had leaked. Upon a visit to the toilet it had leaked, now not wanting to go into too much detail, it was very watery, which made it near on impossible to deal with. Fortunately, I have a wonderful sister who came to my rescue and helped me and we got me sorted. I was determined it wouldn’t ruin the rest of my evening and carried on. Yes I got upset but that’s natural. Unfortunately, a bag leak knocks your confidence but you cannot let it stop you getting on with your life, there are worse things that can happen. I have always been honest about how I actually appreciate my bag as it gave me life back, but at times like yesterday I can really hate my bag and feel a bit down that I have it. But I will never feel sorry for myself because, I am alive. I also have so much to be thankful for, a nice home, a good job, lovely friends, an amazing family and a great boyfriend, sometimes I have to pinch myself that life is treating me this well. But as I said earlier, it is so important to appreciate every moment as it can so easily be snatched away, hopefully it won’t but it’s still better to be grateful.

I remember being in hospital before my operation and feeling so dreadfully ill that I actually thought I was dying (In a way I was, the op saved me), and I also remember feeling at peace with it, I always assumed if you were dying through illness it would be really distressing but there was something peaceful and accepting about it. However, all I cared about and all that mattered was knowing I had love in my life and just hoping my family knew how much I love them. There were no regrets, no ‘I wish I had…’ it was all about my loved ones. Nothing material even crossed my mind. Although, I do also remember thinking it would have been nice if I had managed to get in one last glass of champagne (well, this is me!). Fortunately I lived to tell the tale and got to drink  my champagne, so I can’t hate my bag, despite the leaks. But I can also appreciate that when all is said and done, all that will matter are your loved ones.

So whatever you are doing, make sure you give your loved ones a big hug tonight, appreciate everything you have and be thankful you get to wake up tomorrow and enjoy life all over again.

Thankful

 

When did my ovaries and marital status become public property?

I am an odd human being, you see, I am in my 30’s (been in them a while) and I do not have children and nor am I married and this seems to warrant much bewilderment among, well, everyone. It seems it is very unusual indeed to be this person, I don’t think it is, but the way people act you would think that it is as unusual as an Alien landing on Earth. I have a boyfriend and we live together but it seems this isn’t enough in the world of people. I am sure there are many women out there who can relate to this, but I am ALWAYS being asked, ‘when are you getting married?’, ‘do you want to get married?’, ‘do you think he will propose?’ ‘does he want to get married?’ ‘do you think you will have children’ ‘do you want children’…..you get the picture.

Of course it isn’t just me that suffers with these questions, married women without children are asked the child question, married women with 1 child are asked if they want more children, pregnant women are asked when the next one will be. Men do not have this problem, men talk to men about football and boobs and computers. Have you ever seen a man get into conversation with another man and ask him, ‘so then mate, when you having children?’. I am not saying it doesn’t happen but certainly not as frequently as it does for us women.

It seems that you hit your 30’s (I don’t remember it being a frequent problem in my 20’s) and your ovaries are suddenly everyone else’s business. Why do complete strangers feel it is ok to question my marriage and child preferences? Those who have read my blog or who know me, will know that I am not a secretive person, I am very open, perhaps a bit too much sometimes. I would love to be one of those mysterious types, the sort of person others find intriguing because I am such an unknown entity, but sadly I just like to reveal stuff about myself whether or not people want to know!

I am not saying I am completely innocent, I have probably been guilty of asking women myself in the past, but since I have been the subject of much interrogation I am very aware of it and do not ask unless it seems it is appropriate. Plus, who knows what a woman may be going through, how do you know she isn’t trying for a baby but is having difficulty conceiving, bringing up the subject could cause a great deal of upset and hurt.

But what baffles me the most is people’s incessant desire to know such things, is it because they are a bit stressed with their brood and want you to be too, or are they indescribably happy and want you to have the same happiness, or are they just plain nosy? Whatever it is, it drives me crazy and I don’t know what the fascination is. It just seems that unless you are married with two children over the age of 5 you are not immune to the questioning on marriage and children.

What I will say is that I am not married (or engaged, noooo of course this doesn’t bother me ;)! ), but it also means I am not saving for a wedding and can instead spend my money on shoes, clothes and lovely holidays. I will also say that currently I do not have children which means that I can have lovely lie-ins, I can go on holiday on a whim (I would never do that, I can only cope with planned spontaneity, but I could if I wanted!) I can go out to dinner any day of the week without planning it, instead of buying toys I can buy more shoes and clothes and best of all I can drink my beloved bubbly any day of the week if I want to and if I have a hangover, the day is all mine!

Marriage

Woooo I did it!

That was the 10K run on Sunday, where Mike and I ran for Beating Bowel Cancer in the Run to the Beat event in Wembley. It was our second 10k of the year, which in itself is shocking, as I never even thought I would do one, let alone 2 but it was a good goal to work towards. Now, I certainly wasn’t as fit or in as good shape as I was for our Bupa 10k, the training kind of fell by the wayside over Summer as I preferred to drink bubbly in the garden than go out and exercise, but I was pretty confident I could run the course.

That was until we received the race pack only to find out the course had some hilly parts, I was actually relying on a nice flat course thinking this would get me round quicker, but nope, wonderful hills awaited us. But still, I thought I could still run the 10k with hills, if a little slower.

On the Friday and Saturday before race day I had been to Surrey for work, so lots of travelling and walking (you can see the excuses forming!) and no time for short training runs. On race day, we were up at 5.30am to ensure we could get to Wembley in time. A quick banana and some water en route and we’re raring to go. A quick toilet stop for me (all Portaloos) only to discover my bag had leaked, this is a fairly rare occurrence, stoma appliances are pretty good and tend to be quite hardy. However, every now and then a leak happens and you just have to deal with it as best you can. Always having a change of bags and a clean pair of knickers on your person is usually a good idea (a clean pair of knickers is never a bad idea even if you don’t have a stoma, that and a toothbrush, you just never know!). Fortunately I had caught the leak before it got too bad and had a change of bag. Changing my bag in a Portaloo toilet is not something I wish to experience again, not particularly easy but I managed. I think it affected me psychologically though and something seemed to switch mentally despite my positive pep talk to myself. I also had a foot injury from a run the week before but was determined to run anyway as it didn’t feel that bad.

So, the race starts and we’re away, Mike is in a different group to me (the faster ones!) so I know he is well away before I have started. I did the first 1k ok, as it was all downhill and then it all just went horribly wrong. I had a stitch, I had to stop at 5k for first aid because my toes were covered in blood, I would like to be dramatic and say it was a huge gash in my toes caused by fast running but it was just a tiny cut that bled a lot! Then after that point it seemed to be all uphill, horrible steep mountains which just felt impossible. But I hobbled, jogged & walked and eventually got round. Perhaps if someone had yelled that there was a bottle of champagne at the finish line I may have got a sprint on, but it was just a few cheerers trying to encourage us slow ones (it’s a bit embarrassing) across the finish line. But at least I can say ‘Wooooo I did it!’

Mike did incredibly well, me, not so good, but I was determined to finish the course no matter what. I actually hated every minute of it but I think I may do it again next year, just to improve my time (which won’t be hard) and because it will also seem like a good idea at the time.

You will be relieved to hear that the champagne came out upon arriving home, followed by a very delicious burger, so all was not lost. Now, I have 7 weeks until the next 10K, and I am DETERMINED to do this one well!

homer

I have never been on a diet……

Or at least that is what I have spent years convincing myself of, as it turns out, it seems I am always on one! I have only realised this recently, but because I don’t do juices/pills/shakes/cabbage soup/grapefruit or any other ‘fad’ or ‘quick fix’ I can convince myself I don’t diet. Whether it’s the 5:2 or low carb/high protein or just long term ‘clean eating’ I am always trying something different. I tried to cut out carbs once, I lasted about 4 days but it made me crave donuts and I never crave donuts, so I thought perhaps that wasn’t the plan for me! I did do a two week detox at the start of January, which basically saw me cut out everything except protein and greens, the hardest bit was waving goodbye to my Tetley but I made it through, I’ve never done it again since, I can’t cope with it!
We all know diets aren’t the answer and that a consistent and healthy approach to eating and exercise is the long term solution, but it doesn’t stop us trying out a new regime to get the body of our dreams.
Unfortunately for me, the body of my dreams will not come from a diet of pizza and wine and this is rather disappointing. I go through phases all the time, for a few months I will eat really, really well, be so disciplined and work out regularly, this leaves me in a cloud of smugness as I see the positive effects this has on my body, but it also leaves me a teeny bit miserable as I find this way of life difficult. When I tell Mike that this regime is about to start, he balks a little as he knows what is to come (tantrums, grumpiness and a very difficult Sherrill to live with!). Why does such a healthy lifestyle have this effect on me – aren’t we supposed to feel invigorated, full of energy and extremely happy when following the ‘correct’ lifestyle path? But I am actually at my happiest when I am eating healthily most of the time but allow myself a (god forbid) sandwich now and then – yes a sandwich, not just any sandwich but a forbidden white bread sandwich with butter and mayonnaise – yum!

cupcakes

There seems to be so many food police about, every time you switch on the TV, look at Facebook or read a magazine, the sugar police are telling you to ‘cut out sugar for good’ or the carb police are advising a ‘high protein lifestyle’ and whatever else is in fashion. I do understand the principles of these ways of life but I can’t bring myself to follow them 24/7 even with promises of a body to rival Cheryl Cole. I admire people who do follow that lifestyle, so much willpower is required, but to me only being allowed 1 cheat meal a week (that’s 1 meal not a whole day of cheats) is quite frankly too depressing, a life without Cadbury’s, Prosecco and Pepperoni Pizza is just way too dismal. Having to check everything I eat, watch every mouthful I consume and spend hours in the kitchen preparing, is not the life for me. Life is too damn short not to enjoy the things you love now and then.

Hopefully it isn’t just me that feels guilty over the non-healthy food I eat and is secretly happier when eating a sponge pudding, or that has a constant internal battle between eating the ‘right things’ consistently to get a leaner body and not eating them and suffering the wobbly bits. I am sure I need to just accept myself as I am (especially after going through so much trauma) and sometimes I manage it, but for now I am starting a new plan tomorrow that doesn’t involve wine or pizza!

funny-diets

The dating game………..Part 1

The dating game is a tricky one and especially hard when you have something that makes you feel ‘less normal’, like an ostomy bag. I see quite often people asking the question about dating and when is it right to tell someone you have a bag or are suffering with an IBD such as Colitis or Crohns. The truth is that there is no right time, it is all down to individual circumstances and what feels okay for you.

I really won’t recount all of my dating stories as it may take an age and whilst I love to tell them, I am not sure my boyfriend Mike will want to read it in all its detail! Whatever our situation, we all have the horror dating stories and have all been through the mill when single but who would be without them? They are great to recount over a glass of wine with the girls, they hold funny memories and also make you realise what you don’t want out of a relationship! For example, there was the guy I dated who was a bit like eeyore, his chat wasn’t exactly lively and everything had a bit of a depressing tone to it, apparently he had a great time though as he wanted to see me again – I dread to think what he would’ve been like on a down day! Then the time I went on a date with a guy who worked at the gym I attended, after I told him I didn’t see the relationship progressing, he never spoke to me again – bit awkward when I would bump into him there, I thought I was taking the mature approach. Then there are the dates that should never turn into second dates but somehow do as you find yourself agreeing to it and then running out of excuses to use! I think my worst date was with a guy who was ever so persistent so I thought I would give him the benefit of the doubt and go out with him. Oh, it was awful, he was so boring and I really had no interest in him, as we were stood chatting I was practically sitting in the plant pot to get away from him. To get out of the date I said I was meeting my parents in a bar, he didn’t mind, he came with me (why??) so eventually I told him I had to meet friends at a different bar, this was so I could go home without him realising, however, said bar was in opposite direction to my home and he watched me go so I had to walk down to the pub anyway all by myself!

dates

So anyway, I digress but as you can see there have been some bad dates but there have also been some great ones along the way! But when it came to relationships (pre-Ostomy), telling them about my colitis was never something that featured, after all it was part of me but it didn’t define me and I saw no reason to tell them in the early stages. Sometimes I would be forced into it, such as being hospitalized 3 months into a relationship, kind of forces your hand a bit! As anyone with an IBD will know, mornings are the worst – it is like an explosion, anyone outside your bathroom may think there was a thunderstorm going on whilst trumpets play! It is horrendous. So trying to deal with that in a new relationship is awful, us girls do not like our men to think we use the toilet at the start of relationships, even going for a wee can be difficult, after all, what if they hear us and realise we are humans and not the non-toilet goddesses we have portrayed? Don’t even get me started on blowing my nose too! Having a poo is something we certainly don’t do in a new relationship, we will wait until we get home, or perhaps use a pub toilet if desperate (public places aren’t great but better than the boyfriends house) and as we exit, having been longer than may be appropriate for just a wee, we can use the excuse that we were on the phone! Men do not have this problem, someone I know (no names, she knows who she is) had a boyfriend, who gaily went off the toilet, newspaper in hand, and this was at the start of the relationship!! Bet men don’t agonise about when and where to go – they just go, and some are proud of the fact!

So, this situation is 100 times worse when you have IBD, there is no holding it in, no waiting until you get home, you need to go and you need to go now or there will be blood on the floor (and sometimes more).I have been in a relationship where there the toilet and bathroom are one room, this is the best situation – you can turn on the shower, poo in peace, safe in the knowledge he will be thinking you just have really long showers (actually, I am not sure a man would sit there and think about that), or run the tap if you have already showered to disguise any noise. Sometimes it just becomes easier to tell a person you have this condition and what can happen, it’s an embarrassing tale to tell as we are all a bit shy when it comes to talk of poo but it makes it easier for yourself in the long run.

I have a wonderful boyfriend called Mike, he is handsome, kind, loving and all other sorts of nice things and we have been together just over 3 years. Three years ago was my worst ever flare that led to my month long hospital stay which ended in my emergency surgery and my bag. I didn’t tell Mike about my Colitis until date 3, (dates 1 & 2 consisted of me barely eating and just praying that my intestines behaved). Mike mentioned about staying the night at some point, but given that I was in an awful flare I just couldn’t bear the thought of staying over at someone’s house. I decided to be honest with him rather than try and make excuses as to why sleepovers (separate bedrooms of course) were out of the question for the foreseeable future. It was a good job I did as a week later I was really, really ill and my whole nightmare began. We had a few dates in hospital, obviously I am such hot stuff in my moo cow pyjamas, attached to a drip or two with ever shrinking boobs and sticky up hair that Mike just couldn’t resist the lure of seeing me 😉 But as is to be expected, starting and maintaining a relationship whilst in hospital/recovering is difficult, so we kept in touch but nothing really happened for a couple of months.
So I was left in a situation of being ‘back on the market’ but now I had an ostomy bag to contend with, I also wasn’t sure if things were finished with Mike and I as I still felt it had potential, and I was sure once he saw me out of my pyjamas he might realise I was much better! I wasn’t going to stop myself from maybe meeting someone else but I also wanted to decide how I felt about things with Mike so I needed to give myself time. After a period of recovery, I was ready to hit the town again and so my sister and I would get glammed up and off we’d go. Then there came a point where Mike and I were seeing each other, but it was all very casual, you could say it was ‘complicated’ as Facebook would refer to it. I didn’t want to be unfaithful but then again didn’t know if I had anything to be unfaithful about. Honestly, life is far easier if you’re just honest and ask questions, but why would we be truthful and open when we can weave a complicated scenario for ourselves?! Anyway, back to dating, men may have chatted me up or made advances, shall we say, and this is going to sound awful but I would tell them I had an Ostomy bag thinking it would put them off and you know what – not once did it ever put a guy off, in fact the response would usually be ‘it doesn’t matter’ or ‘oh, so how does that work then?’, definitely not the responses I was expecting and so different avoidance tactics had to be employed!

I am not saying that some people wouldn’t be put off by it, I have not experienced that, and of course, if they were they weren’t worth it in the first place but it is not something you should worry about hiding. Don’t let it define you, have a date or two before telling them, but if it happened to come up naturally earlier on, then fine. It is whatever you are comfortable with. It’s a scary thought; after all, there is a natural feeling of thinking you could be setting yourself up for rejection, but better to find out early on. If someone is put off by it, it is a reflection on them not you, and that is true with dating anyone, illness or not. Mike has never really known me without the bag and it doesn’t bother him one bit, we are both used to it now.

And if I was single I would still go out with as much determination and gusto as before, the bag wouldn’t stop me at all, it hasn’t stopped me in any other area so why that one? Whatever your situation, if you are single, embrace it, enjoy it – even the bad dates, take them as experience, something to giggle about, but know that you are fabulous and someone else will think so too. And really, be honest, tell them you’re not interested even if they end up never talking to you again – it’s easier in the long run!

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It’s all about the knickers!!

I have said for a couple of weeks now that I would talk about my knickers and I really don’t wish to disappoint anyone as I am sure you are all very excited for this 😉

It’s amazing how much publicity there has been recently around girls and guys wearing Ostomy bags and hi-lighting Inflammatory Bowel Diseases (IBD), encouraging people not to be shy and to proudly talk about their bags and/or their IBD. I think this is great and it really is a taboo subject that we should all be more open about. I work for a bowel cancer charity and we are all about raising awareness and encouraging people to talk poo.

But there are times when you might not want to have your bag on show or you may need to cover it up, so what do you do then? Sometimes you just need to keep the bag under control and not have it all wild and free!

Well, like I say it is all about the knickers!! We all wear them (well some may not but that’s up to them!), we all need them, (if nothing else, then just to protect our modesty) and they are an integral part of any outfit. We all know we need the right pair of knickers to make an outfit look good, in this day and age of assorted knicker shapes, vpl’s (visible panty line’s) are inexcusable. How many times have you seen a lovely looking girl with a fab figure wearing a beautiful dress, only to glance at her derriere and realise she has ruined her look with the wrong pair of knickers, the elastic is digging in, she has the dreaded vpl and yet she doesn’t seem to have noticed (good for her, I am not criticizing – well maybe a teeny bit 😉 but if she’s happy then so what?) But the right pair of knickers would just finish off that outfit. This girl obviously wanted to go for sexy thong over Bridget knickers but we all need the Bridget’s at some point!

For general outfits (i.e. no special underwear needed) in my pre-ostomy days I would throw on a lacy thong or some other teeny pair of knickers, without a care in the world, well that was until half way through the day when I wished I hadn’t thrown on the thong with such abandon and had gone for comfort instead. But, knickers weren’t really something I thought about, they were something I would wear (my mum brought me up well) and had to be clean (obviously) but I wouldn’t go and spend copious amounts of money on them. I HATE spending money on underwear, I don’t care how beautiful it is, how wonderfully that bra sits or the matching knickers just look gorgeous, I do not want to spend £50 on them, I would much rather purchase a dress with that money. Let’s face it, yes wearing expensive & matching undies may make us feel wonderful, but only for about 5 minutes before everything starts to dig in and we are yearning to take them off. And if we are wearing the matching set for a nice little boyfriend surprise then again how much value does it bring, where men are concerned, the bra is usually first off before they have even so much glanced at your carefully put together beautiful matching set. Life isn’t like a film, where we find ourselves in several situations which require us to strip down to our underwear, so always sporting sexy co-ordinates isn’t such an issue for everyday life.

Now I know I sound slightly contradictory as I have stated that it is all about the knickers, whilst in the next sentence saying they’re not that high a priority but what I mean is that you need the right knickers for certain outfits but I resent spending lots of money.

However, now I have my Ostomy bag I have become more obsessed with knickers than ever before. I still want to wear tight dresses & tops and other nice clothes and do not wish to be restricted by my bag so the secret is in the knickers. There are a couple of specialist websites for underwear for Ostomy’s here and here which are great but I have also found some fab knickers from Triumph, Littlewoods and Primark. Most days, I can still wear ‘normal’ knickers, having a bag doesn’t stop that but when you want to feel a little more secure and want to flatten the bag and hold it in you need a special knicker! I found some amazing ones in Triumph which were high waisted thongs, so perfect, they even had the matching bra, the discovery of these knickers meant I could wear all my lovely tighter dresses without the vpl safe in the knowledge my bag was secure, even better, they even looked nice, slightly 50’s style, so I didn’t have to feel frumpy either! Unfortunately getting a few pairs has set me back about £150 but I think it is worth it. I cannot believe that I am now willing to spend so much on knickers, but it is important to feel good, and I think whatever your situation, if something makes you feel confident, sexy and happy then it is worth every penny! But if you don’t have a spare £150 hanging around (Mum’s credit card came in handy!) then Primark have fabulous shapewear that is great if you wear a bag and even if you don’t have a bag the knickers are fab anyway, we all need everything to be sucked in sometimes!

Of course there are times when I miss my days of carefree knicker wearing moments, it would be nice not to have to worry about which pair suits which outfit, if today’s dress needs a special pair or if I can wear a pair of jeans and vest without having to wear the more unattractive bigger variety just to have smoother line over the torso, but it is still a small price to pay for being healthy. But, when you wake up tomorrow, still slightly sleepy and just grabbing a pair of knickers from your underwear drawer, spare a moment to feel grateful that you can pick your knickers with such wild abandonment!

And one last thing, is it just me or does anyone else ever pack waaaay to many knickers when going away? I always like a few spares (of course from a practical perspective, I need a spare in case of leaks) but I am definitely OTT with the amount I take, I always have been, I am not sure what I am expecting to happen or why I should need so many spare pairs but I just cannot bring myself to pack ‘just enough’. Men do, if they are away for two nights then they will pack two pairs, exactly what they need, they don’t feel the need for a spare pair, clearly they shouldn’t need them, they are old enough not to have accidents but why do they not feel the need for a ‘just in case’ pair? How can they be so confident and carefree?

So, for now I shall continue to over pack my knickers, run around buying every high waisted thong I see and hope that if you are walking behind me then you are not checking out my derriere to see what knickers I might be wearing!!

Knickers

Hooray, hooray it’s a happy holiday……

So I am off on holiday, I am very excited as hopefully you will remember from my previous posts how much I love holidays!

But before I talk about this I must first celebrate my success! Yes, I did it, I completed the Bupa 10K run in London on Sunday! I was so chuffed, I got round in 1 hour 8 minutes which was ok for my first one, I also managed to run the whole thing (no walking!) although I did have to stop 500 metres from the finish line to throw up a little bit – but I carried on and made it through! I also cried when I got to the Marquee where all the others were, I could feel myself welling up as I crossed the finish line but I held it back until I saw Mike and the Beating Bowel Cancer team! It doesn’t take much for me to cry at the best of times but I think this was just such a huge mental achievement after the last few years that all the emotion came out! In April last year I was sat in the Surgeons office and I was given the all clear, but I was also feeling fat and unfit and never dreamed I could run 1km let alone 10km – so I am really proud and showing everyone who is facing something similar that you can overcome your obstacles! Everyone was so generous and supportive, we managed to raise £1010 in sponsorship money for Beating Bowel Cancer which is amazing and will really help to raise awareness and save lives. Thank you to everyone who has sponsored or supported us.

Once the run was over it was time to get into holiday mode, starting with a celebratory bottle (or 2!) of champagne that afternoon/evening and then on the Monday, Mike and I had a lovely two hour spa experience booked complete with full body massage, it was bliss and well needed. I nearly didn’t make it due to the champagne hangover but I soldiered on. A lot of people with Stoma’s worry about things like swimming and spas but really it is ok and no-one needs to know you have it.  Massages are fine and just the same as before and as for swimming and the spa – well those gorgeous high waisted bikinis come in handy again (I still can’t stop buying them).  I have to say, that I think my sister may have needed the spa more having just completed a 100km walk (yes you read that right, 100km!) with her boyfriend that weekend. They did theirs for National Rheumatoid Arthritis Association as Leanne has Rheumatoid Arthritis unfortunately, so hats off to both them but especially my fabulous sis who also has her own battles to overcome. So we have both done our bit for charity, and if you notice a gorgeous blonde walking wonky alongside a limping man then you know it is only Leanne & her boyfriend still recovering from their walk!

I really should have blogged twice these past couple of weeks as so much has been going on but it’s also been difficult trying to fit it all in (I am BZ remember?!) so I will try not to talk for pages and pages but I have a glass of bubbly in hand as I type (I am officially on holiday) so I may chat lots.

So, back to the holiday – woo hoo, I am off to Turkey tomorrow for two whole weeks with Mike, I cannot wait, it has come at exactly the right time too, after the run and with lots of great stuff happening at work, it is really time to chill and recharge. We are going all inclusive and to a hotel with lots of entertainment. We both love it, you’ve got to have a bit of the ‘Benidorm’ on holiday and evening bingo and stage shows are where it’s at 😉 We also love the daytime activities, well Mike does, the activity I like is choosing which cocktail to have and turning over on my sun lounger. Mike joins in everything, so we don’t see much of each other during the day, we reconvene at lunch and when I am demanding a drink from the bar but we both have fun! We are both very similar on holiday and like pretty much the same stuff which is great, makes it much easier. I have had a boyfriend before who liked to do ‘trips’, I can’t think of anything worse than being stuck on a coach for the best part of a sunny day trying to find culture in Mallorca, so when forced to compromise (it’s good for relationships apparently) I am not the happiest – cue arguments and tantrums. So to have a relationship where we both enjoy the same is great.

A quick bit on holidays with a stoma – you can still go on holiday and enjoy it the same and do all the same activities you would as before, I find my stoma behaves on holiday (i.e. not too active, knows when to be quiet), I don’t know if this is because of the heat, being relaxed or a combination, but because of this I feel it is my destiny to holiday as a full time job! The only difference with holidaying with a stoma is the amount of supplies you have to take. You must make sure you have absolutely enough of everything and extras ‘just in case’ and take it all in hand luggage in case your suitcase goes missing. The advantage to this however, is being able to have extra hand luggage allowance due to a medical condition so I am able to use my carry on to stash a few extra clothes too! Of course I am also being cautious, making sure I have something to change into in case of a leak but it is also handy to stash a few bits to get me through a couple of days, so in the terrifying event my case goes missing I don’t have to parade around in an ‘I love Turkey’ T-shirt and a Speedo swimsuit!

What I would like to know is if there is anyone out there who has actually mastered the art of packing light? We all read about it in magazines and how one sarong can magically be dressed three ways (although why would I wear my sarong round the pool then drape it artfully around my neck come the evening, I would be so paranoid a boob would pop out) and how you only need a white shirt and a pair of shorts and you have a weeks worth of outfits, but has anyone actually done this? Isn’t part of the ritual of going on holiday to take too many clothes and shoes in the event we may just want to wear it and to come home having worn barely half, saying ‘I took too much, I can definitely pack light next year’……

So I am signing off, ready for the stress of the outward journey, only to relax once through customs with a Duty Free carrier bag full of purchases I don’t need and a glass of bubbly in hand as I am ‘officially on holiday, again’ (besides there are no time zones at airports or on planes so bottoms up!).

See you in a couple of weeks all! J

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